PROJECT UPDATE
MARCH TO JUNE 2024
NEW SHELTERED PEOPLE
In the first half of 2024, the Butterfly Garden Project sheltered 16 new patients, including five babies! Currently, there are 155 sheltered patients and a waiting list of 16 people waiting for new sponsorships so that they can start receiving care and all the assistance from the project. Sponsorship is essential for the sustainability of Garden of Butterflies, and for strategic and financial planning for new patients.
NEW DIGITAL PLATFORM
The coordinators of the Garden of Butterflies project have taken a very important step to speed up the supply of the Love Boxes delivered every month with medicines and hygiene items for the sheltered people. They have implemented an online tool for requesting the Box of Love, which used to be done manually. It's e-commerce, where the family enters the sheltered person's login and password and places the order electronically, in a more organized and faster way. But, of course, everything is monitored by the nurses, nutritionist and pharmacist.
CARAVAN
This year, in May, the first Butterfly Garden Caravan took place! It was a very intense week of exchange and learning. The caravanners had the opportunity to experience all the project’s activities, meet and socialize with the Butterflies, learn all about the history of the Butterfly Garden and learn more about Epidermolysis Bullosa.
CARAVAN II
The second caravan for the Butterfly Garden Project already has a date and registration is open. It will take place from July 28 to August 4, 2024. It is important to clarify that this caravan is not organized by the FWB but by the project, which is supported by the Fraternity. We are sure that it will be a very rich experience for all the participants!
Sending bandages to Butterflies
Members from the Germany Volunteer Center, sign a partnership with Sterna-Care, a representative for bandage companies, to send bandages to the project periodically. To start the action, a box with bandages costing nine thousand euros is already reserved to be sent to the Garden of Butterflies by a volunteer going to Brazil. A calendar has been prepared with the dates when the volunteers will be flying to Brazil, so that they can bring the donations with them. Thank you!
"It's gratifying to have a body almost entirely injury-free.
I know that getting here is not easy, but not everything in life is, so you just need to have faith and willpower. All this result comes from diet. I used to say 'I will make it, as everybody does, I will change my diet; why wouldn't I manage to have a healthy nutritional habits? '. It is hard because we have to quit eating some delicious food, but living without pain is what matters to me. I move on with increasingly incredible results and I will get even more! "
Janaína Santos - Assisted by the project
